Life is too short to live the same day twice. Time is our most valuable asset. And one we are most wasteful of.
The more you value and appreciate every moment, the stronger and more positive your mindset becomes. Holding on no matter how hard life gets; not allowing yourself to be broken by the unfairness, pain, and a "rare disease" diagnosis. Creating a world you want to live in, and you don’t need a vacation from. Creating a circle of friends, family and community where there’s kindness, compassion, guidance, and inspiration.
You have been assigned this mountain to show others it can be moved.
My mission is to find a cure for IIH, Idiopathic Intercranial hypertension -- otherwise known as pseudotumor cerebri -- in my lifetime, so that the thousands who suffer from this diseases can be cured; and so that I can be cured too.When you hit rock bottom it becomes the foundation to rebuild your life upon. Anything is possible if you have enough nerve. We do not need magic to transform our world. We carry all the power we need inside ourselves, through faith, and trusting God.
My goal is to raise awareness, and to educate myself and others, especially those in the medical field - doctors, hospitals, staff, and nurses - about rare diseases. I want to inspire, encourage, and challenge them to exhaust all resources, properly treat, and care for each patient without dismissing anyone.
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